Abdominal muscle spasm and pain

I’m 10 years out with CIDP. I have significant pain in my feet and legs. I’m a university professor, but have had to go on half-time medical leave.

In the past year, there have been three new developments: loss of appetite and weight, increased fatigue, and a new kind of pain. This pain is associated with some odd kind of abdominal spasm. I will be laying in bed, maybe getting a few twitches in my limbs, when suddenly my stomach muscles tighten, pulling all of my limbs inward. Then, nothing. Everything is relaxed and back to normal. Wait, a little hint of a twitch. Then a stronger twitch where I hold the stomach muscles in for a few seconds, voluntarily. Then relaxed. A minute later: “Ughhhhhhh,” I involuntarily moan as my stomach flexes, and I go a little fetal on the bed.

Then the guttural bursts start, sort of as if I was being punched in the stomach. If my wife is not in the house, I sometimes let loose with a long cry, moan, whimper, or yelp. The best thing to do is to get out of bed and shake it off. Vaping some MJ helps. The opiates I take on a strict schedule, so I don’t know how much effect they have at any given time.

What kind of pain am I experiencing here? My usual pain feels like I am standing in 15″ of cool water, with a faint electrical charge humming in the background. This new pain is less constant, is associated with abdominal spasms or flexing, and doesn’t produce any hot/cold/electrical pulses, tingles, or bursts.

As I mentioned above, this pain started in the past year, along with decreased appetite and much greater fatigue than in the past.

[I started out with IVIG in the hospital, then continued it for two months at home. It was discontinued at that point, and I’ve met with three different neurologists at the Mayo Clinic and a local university hospital to ask if I should start taking it regularly, like so many people in this forum seem to do. But, each neuro said the risks outweigh the possible benefits.]