a CIDP patient with eyes problems

    • November 19, 2015 at 9:32 am

      I Was diagnosed with CIDP in 2004 and now I have a new symptoms my eyes I have double vision is it from the CIDP or not?

    • November 19, 2015 at 2:51 pm

      A variant of CIDP called Miller Fisher Syndrome (MFS) can be involved with blurred and/or double vision. There are numerous other causes too such as Diabetes or imbalanced blood pressure. You should be diagnosed to identify the underlying cause so it can be properly treated. Info about MFS can be found here:

    • November 19, 2015 at 3:09 pm

      i don a blood test and blood pressure test every thing is ok but the double vision is something new for my symptoms so is it from the CIDP Or something else

    • jk
      November 20, 2015 at 7:27 pm

      Follow up with what Jim already told you. If his recommendation to “…be diagnosed..” is unclear- well, good luck.

    • December 3, 2015 at 2:46 pm

      I have been diagnosed with CIDP since 2006. January of 2015 I woke up one morning and the entire lower half of my left eye was black. I could not see through it at all. Went to the doctors, numerous blood tests, numerous Rheumatology visits and numerous eye doctor visit later they said I had sculcolitis. I had not been on any of my CIDP medications, so they put me back on cellcept. After taking the Cellcept for approximately two and a half months I noticed an improvement in my vision around August 2015. The blacked out portion of my left eye is now in the far right hand corner barely noticeable. The sculcolitis has gone away however they said that I had a mini stroke in the my eye which is created this black spot. Every doctor I saw including University of Washington eye specialists said that CIDP was to blame.

    • December 3, 2015 at 3:18 pm


      For my 

      Case the cellsept is not ok

      I use methylprednisolone

      For my eye’s they are much better for only just 3 days on it

      Did you try it?

    • January 7, 2016 at 2:58 pm

      I had double vision with CIDP but it went away completely. The eye doctor told me that the muscles on one eye were not working, so he put a patch over my good eye which forced the bad eye to move. It worked.

    • GH
      January 13, 2016 at 7:28 pm

      What dos your neurologist say?
      What does your ophthalmologist say?