6 Month anniversary 1 question
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AnonymousApril 7, 2007 at 8:13 pm
Hi, Yep 6 months all the nero doctors told my wife I was not going to make it. I whent thru the hole bit trac ect ect. They said my age was against me. I am 73. Fooled them haha. I feel great the neurontin 2400 mgs helps a lot. When I put my shoes on I get a feeling like my socks are bunched up the pads right under my toes seems a little bit larger than before GBS, dont hurt dont harm my walking? Im learning my limitations. I am so grateful for all the help I have received from all of you. Think Good Thoughts…gg
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AnonymousApril 7, 2007 at 11:20 pm
I reach my sixth month anniversary next week – I start counting from when my GBS peaked….when I put on my socks, I feel like my toes are caught between a big piece of yarn and my big toes seem larger. I notice swelling my by feet and especially my toes since I have started walking..or when I get out of bed in the morning. I am so glad you proved the doctors wrong….remember the difference between God and doctors. God doesn’t act like a doctor! ( had too many wrong diagnoses!)
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AnonymousApril 7, 2007 at 11:27 pm
Dear Gene
I’m delighted you fooled ’em but then, what do they actually know? I can only hope that they learn from their experience.
As to the bunched-up socks feeling, have you tried – not wearing socks? As long as the weather where you are is okay, that is. Or, a larger size shoe?
God bless
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AnonymousApril 9, 2007 at 3:18 pm
Hi Gene,
I am almost 2 years post GBS (May 2005) and I still have a weird sensations in the balls of my feet. They are more sensitive and sometimes feel like they are swolen. My hands also feel weird. I have noticed that when I am tired both my hands and feet will be worse. I am still waiting to wake up one day and all the symptoms be gone.
What amazing progress for you! God is good!
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Hey Gene, I know exactly how your feet feel.
I am about 18 months post GBS and every time I put shoes on, I have to tell myself the socks are on correctly. As you say – it doesn’t stop you from walking; but it can be annoying. Certainly better than flat on your back and a machine breathing for you.
Keep on keepin on.
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AnonymousApril 12, 2007 at 11:29 pm
Yup! the sock thingy ~ thought I was the only one :p I am totally convinced that [I]nothing is out-of-line [/I]for a strange residual 😮 Just because we haven’t heard of it from someone else doesn’t mean it isn’t so. You gotta love this “family” ’cause we’re a strange bunch 😀
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AnonymousApril 13, 2007 at 8:24 am
I also get the bunched up sock feeling. My feet are extremely sensitive. I am experimenting with desensitization for them. I got some of the croc beach shoes that have little nubs in the soles and I am trying those. I wore them yesterday and this morning it still felt like I was wearing them! 😮 Has anyone tried anything like this?
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AnonymousApril 13, 2007 at 9:12 am
I wear socks with my crocs, especially in the cold weather. i have worn them without socks, but it is alittle uncomfortable because of the nubs and the elevated toe area, i also have to use the band to keep them on my feet so i don’t fall. they are soo much more comfortable right now on my feet then my new balance shoes-not great for support like my nbs but until i fall they are nice.
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I have to wear socks all the time because the ground feels too cold and rough to me.
I am so glad you are recovering well. It’s great to hear!!
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