Were you either cool or cold during any of the nerve…

December 8, 2010 at 6:52 pm

conduction tests? IF so, your tests could read ‘normal’ when they mite not be so. Sometimes it can take 3-9 months for the real nerve damage to show up so…expect more nerve testing.

Secondly, you didn’t mention when this all started – my own started after a long bout of pneumonia. Couple of months later? WHAM! My own nerve tests were ‘normal’ at first, then went downhill rapidly.

Hopkins is known to do ‘punch skin’ biopsies, is that what you are having? OR are you having the ‘sural nerve biopsy’? If the latter, DO check it out thoroughly with your insurance company. Some companies no longer cover the sural procedures as they are considered too invasive and also prone to infection. Do web up both types of procedures to be aware of the benefits and pitfalls of either test. Don’t be afraid to ask questions here and especially of your neuros!
There are many good neuros at Hopkins. You are lucky to be soo close to them to get tested there!
I am glad that you found this site. There are a lot of good people here, who have been thru what you are going thru now.
Please, don’t be afraid to ask any question. No matter how silly or simple it mite seem. Sometimes those questions are your keys to getting answers.