Hi,

I have had weak and heavy legs for over 13 years. I went to the hospital by ambulance on the late night hours of Dec 26th, 1996, after both legs collapsed and were paralyzed. However, I was not diagnose GBS, and did not receive either IVIg or Plasmapheresis. My GBS progressed to CIDP (self diagnosed, I may add) and I have been getting regular treatments of IVIg since.

I have severe axonal nerve cell damage, and do not have 100% of my leg strength. I have approxmately 70% leg strength because my muscles do not receive the chemical acetylcholine from the nerve cell neurotransmitters as they should, so the muscles must support themselves…and as we grow older, nerve cells start to die and are not replaced by any body function.

I actually feel like my legs are 2×4’s and my feet feel as if they are two bricks from the damage in my legs…and it has been that way since recovery from GBS started 13 years ago.

Warmest regards to all.

Jethro

Hi,

I have had weak and heavy legs for over 13 years. I went to the hospital by ambulance on the late night hours of Dec 26th, 1996, after both legs collapsed and were paralyzed. However, I was not diagnose GBS, and did not receive either IVIg or Plasmapheresis. My GBS progressed to CIDP (self diagnosed, I may add) and I have been getting regular treatments of IVIg since.

I have severe axonal nerve cell damage, and do not have 100% of my leg strength. I have approxmately 70% leg strength because my muscles do not receive the chemical acetylcholine from the nerve cell neurotransmitters as they should, so the muscles must support themselves…and as we grow older, nerve cells start to die and are not replaced by any body function.

I actually feel like my legs are 2×4’s and my feet feel as if they are two bricks from the damage in my legs…and it has been that way since recovery from GBS started 13 years ago.

Warmest regards to all.

Jethro