Residual Weakness

Hi: Welcome to the forum. With severe residual weakness I would recommend you contact your neurologist as soon as you can. It is hard to know, without knowing all your details, but if this is something new and sudden you should check it out at once. Even if it has been gradually getting worse for the last few weeks I would check it out. If you have been overdoing physical exercise or have gotten very tired it is possible for residual weakness to recur, but when you say they weigh about 500lbs that sounds like more than residual weakness. If you are having a recurrence you want to get IVIG as soon as you can. If it is just residuals a few tests should show it and, if you get the rest you need, it shouldn’t last too long, though everyone is different with residuals. Good luck. Jeff

I’d had a relapse of CIDP last year? And refused the walker until I fractured something. The next fall led to a truly BAD break. There are times to be a careful ‘chicken’? Now is one! Don’t know about you? I don’t consider hospitals or rehab FUN!
BTW? I hate dishrag legs! Good hope with your neuro appointment? One can always hope! Hugs and more HOPE!

Lately, I’ve had more weakness in my legs, feet and eyes. And it’s also toxic-air time here because people are out spraying for dandelions in windy weather, and you can’t walk downtown without encountering the spray every few yards. By the time I get home, I’m winded and wheezing, headachy and nauseous. The cramps and contractions have started up again in my arms, hands, feet and legs, and I’ve got nosebleeds. Much weaker lately, so I think there’s a connection between these pesticides and my relapse. My typing is so bad right now I have to correct every couple of words, and my eyesight so blurry that I had to change to stronger reading glasses. It will probably change again when the toxins lessen in the air and water. Take care!

Hi,

I have had weak and heavy legs for over 13 years. I went to the hospital by ambulance on the late night hours of Dec 26th, 1996, after both legs collapsed and were paralyzed. However, I was not diagnose GBS, and did not receive either IVIg or Plasmapheresis. My GBS progressed to CIDP (self diagnosed, I may add) and I have been getting regular treatments of IVIg since.

I have severe axonal nerve cell damage, and do not have 100% of my leg strength. I have approxmately 70% leg strength because my muscles do not receive the chemical acetylcholine from the nerve cell neurotransmitters as they should, so the muscles must support themselves…and as we grow older, nerve cells start to die and are not replaced by any body function.

I actually feel like my legs are 2×4’s and my feet feel as if they are two bricks from the damage in my legs…and it has been that way since recovery from GBS started 13 years ago.

Warmest regards to all.

Jethro

Hi,

I have had weak and heavy legs for over 13 years. I went to the hospital by ambulance on the late night hours of Dec 26th, 1996, after both legs collapsed and were paralyzed. However, I was not diagnose GBS, and did not receive either IVIg or Plasmapheresis. My GBS progressed to CIDP (self diagnosed, I may add) and I have been getting regular treatments of IVIg since.

I have severe axonal nerve cell damage, and do not have 100% of my leg strength. I have approxmately 70% leg strength because my muscles do not receive the chemical acetylcholine from the nerve cell neurotransmitters as they should, so the muscles must support themselves…and as we grow older, nerve cells start to die and are not replaced by any body function.

I actually feel like my legs are 2×4’s and my feet feel as if they are two bricks from the damage in my legs…and it has been that way since recovery from GBS started 13 years ago.

Warmest regards to all.

Jethro

Jethro,
For many years now I have wondered why so many young people seem to recover much better than people who get CIDP when they are older. You might have just answered my question, that nerves do not regenerate as much as we age. I have seen many younger people on this forum get really bad, even worse than me, & yet make a full recovery from CIDP. Interesting, makes a lot of sense, thanks…