January 13, 2008 at 1:48 pm


Thanks for the info. Hope Shannon does well and sees benefit from Tysabri. Please keep us posted on her progress. Good luck.


January 8, 2008 at 11:53 am

Hello everyone. I’ve been off the site for some time now, but have been reading recent postings about Trsybri and Cytoxin. I have been accepted into the one touch program and was approved by my insurance company to try Tysabri, but after extensive research about the potential PML side effect, I’ve postponed this treatment until I see my neuro in March. It is made by the same company that makes Avonex, also an MS drug. I used this for nearly a year with no results so we stopped it. Cytoxin was also used for 11 months with no positive results, which seems to comfirm that we all react differently to diffrent treatment protocals.
I’ve had relapsing CIDP since 1986, and we’ve tried about everything out there. Tysabri is on the table now because it has been showing very positive results in several MS studies. My neuro runs one of the one touch programs, so I have made an list of additional questions I need to have answered before I go ahead with the treatment. He has stopped my Cellcept in preparation for Tysabri as patients with compromised immune systems or who are taking immuo suppressants are at higher risk for PML.
If any on you who may be considering Tysabri have any questions that your physicial has not been able to answer, I will be happy to add them to my list.
It’s good to be back on the site. My best to all.