Thyroid can be connected? Or it’s own culprit.

August 10, 2010 at 7:54 pm

I’d had hypothyroid issues [underactive] looong before the gbs/cidp issues came up! It’s common with women starting or finishing menopause. Mine started EARLY!
Look up ‘endocrine web’ and you’ll find full descriptions about how these teeny glands do wonders and work so miraculously in your body!
I’d had ‘hypo-t’ for many years before my CIDP? 9 months later? I had a BIG FLARE which was diagnosed 18 months later as ‘Hashimoto’s thyroid’-meaning it was attacked by my ‘immune system’. Sound familiar?
Web up the symptoms? They can be scary on their own, let alone having another immune issue to boot? To make it worse? Neuros and Endos [endocrinologists] don’t usually ‘talk’ to each other? But then? Soo many neuro problems are affected/impacted or complicated by the endo and many other issues? That it’s kind of a comedy routine as to ‘Who’s on First? etc.’
The ‘free T-3 and T-4’ are useful? But when you’ve got the autoimmune to deal with? There IS a test [expensive tho, so some docs mite not want to do it…as a caution?] Which are the ‘autoimmune T-3 & T4’.
Good luck with all this! Its bad enuf be be zapped by one immune issue? But the second [thyroid?] is usually, once diagnosed it’s easier to treat than most things and get you can get back to ‘somewhat normal’…given all else going on. Don’t expect overnite results…the doseages and follow-up tests usually go on for 6 months to a year. Often longer. W/LOTS of blood tests to boot! Once you get back on an even keel? You’ll be lots happier!
Hope this helps! Keep faith and keep at it! YOU KNOW WHAT’s RIGHT FOR YOU!