Tammy a friend of Mike’s

Hello My name is Tammy. I am a friend of Mike the band teacher for New Orleans. I am going around in circles with Katelyn’s doctors (Katelyn is 6). He doctor is on vacation for 2 weeks and she has an appointment to take some kind of test on Friday, February 23. I had to call the office again and tell them that she is not having headaches and they upped her medicine. She now takes 100 mg in the morning, 50 mg when she gets home from school and 100 mg at night, the medicine is Neuroutin I have no idea what to do. I have giving my child so much of the medicine. They have not said that she has GBS, but they are 99% sure, that is what she has. She has no flex in her legs, feet, arms nor her hands. She is now getting headaches, she is falls at least 10 – 15 times a day, and she lost 5 pounds in 6 days. I do think that I have something to worry about, but the doctors seem to be pushing me to the side. Can I please get some help.
Tammy