Stiff? Tight as a drum rigid-sore? YEP!!

January 25, 2011 at 8:10 pm

About 2/3rds of the way thru my first of 2 days infusions? My ankles suddenly go AHHHHH! Almost to the point of being floppy. Win or lose? Dunno.
As for why? As I become ‘due’ for my next infusion, I tend to move around less and less, generally- and that increases edema [resulting from other issues] which builds up body debris in the muscles and vascular systems.
Massage of the affected areas can help, but avoid the heating pad at all costs! It was using a heating pad for one of those other issues that aggravated THIS problem and especially now.
Only thing I’ve found that helped has been interval exercises stretching and contracting these areas using a theraband or the like.
I don’t know IF any biopsy could ‘diagnose’ this issue? Punch Biopsies diagnose topical neuropathies. So, Is he meaning to do a sural nerve biopsy? If so, please readthese following articles:
[URL][URL] Procedure & Cautions…
IF you go further and look up insurance coverages of this procedure? Well, many companies aren’t covering the procedure except in very rare circumstances. As not only the procedure, but the quality in the handling and processing of the biopsies are critical to their validity. Not to mention the potentials for infections. Usually, this type of biopsy is a Last resort or final resort for diagnosis.
I’d declined this procedure as I’d felt I’d met 90% of the diagnostic criteria w/o this procedure. After many years? I am still glad I’d declined!
I would ask your doctor about what other tests he plans on doing! If there are new things out there? I and I believe, others would love to know about them!
Good luck! Let us know what happens, please.