December 1, 2009 at 5:20 pm

[QUOTE=fairly_odd_mother]. . . not handling chaos/stressful environments or events and well it is an interesting combo. My brain shuts off under those conditions and I literally can not think right and I swear things fall out of my ears or get lost somewhere. Anyhow, long list and hopefully someone will listen or see that I am serious about things. Maybe I should just find work, try it out, end up calling in sick for the next couple of days, then work again, etc. Right now after 19 years of being a stay at home mom what I AM qualified to do is saturated and no one will hire someone like myself who may or may not be able to show up. Not a discrimination, just the truth esp when there are others that will show up and can stay all day and want the job too. Does that make sense? I don’t want to waste anyones time either or take away a much needed position that I may or may not be able to stick with. We will see what happens. I appreciate your ideas and input Withhope *hug*

just frustrated….hope my reply doesnt come across the wrong way.[/QUOTE]

Hi Fairly,

I had a long weekend (my daughter got married) and I was practically in a coma by Monday. I am having lots of residual problems right now and would like to cut back on work and apply for SSDI. I have some experience with SSI, since my daughter is almost completely deaf. She was turned down the first 2 times, and people told me that was “normal.”

You might want to start a separate thread about SSI or disability, you would get more responses that way I think.

I think it is common for us GBS-ers to have low self esteem and not feel “worth it” to work or go on disability. Although that is what it is there for, girlfriend! Keep your chin up dear! **{HUGS}} 😉



December 7, 2006 at 4:49 pm

Yea first time only about 6 months and they back dated benefits. Be ready to accept the final conclusion to your specific case. That it is permanent and total and they will accept you Dr’s diag
Bill W


November 15, 2006 at 8:08 pm

Yes I applied in 1996 and got it on the first try. My Neurologist wrote that my disability was complete and permanent. He also stated that this was his and the hospitals position. I also had a letter from Mayo stating that I had some form of GBS( which was actually CIDP)
Good Luck
Bill W