May 16, 2006 at 11:03 am

BOY, I think I’m the only one who doesn’t know what their protein count was and except for a mother and father who would die for me, I have a family who’s too busy with their own lives to care. I had my neurologist for five years and my brother never even sat down to talk to him.

I have pages of copies of medical charts from the day I was diagnosed, but I still don’t have anyone who wants to sit down and look at them with me. I went through five neurologist’s during the first year and a half and none of them explained much to me.