same symptoms

Anonymous
April 28, 2009 at 7:38 pm

I was wondering how your doctor determined CIDP vs Guillain Barre. The symptoms you discribe match symptoms 100%. I have Guillain Barre. I did not have IVIG as I was not diagososed until week three and the symptoms had not progressed past feet partial paralyis, specially toes and abilitity to move toes and ankles upward. My finger were numb,which effected the writing and fine motor control. I two progress to a walker. Steps were the pits. It is now 8 months, and the walker is gone. I still have weakness in legs for going up stairs but can go down them. My feet still feel like I have boots on and have limited range. I take neurotin 2 time per day at 300 mg and this seems to help the weird feeling in feet. Just wondering why they said CIDP.

same symptoms

Anonymous
February 14, 2007 at 11:44 pm

h! when i’m tired, stressed or over did it a bit, i get really shakey too. i can sleep for 2-3 days almost non stop sometimes. we all seem to have very similar residuals. please keep on top of this to make sure it’s nothing worse than residuals. i’m praying for you that that’s what it is.
deb