March 28, 2011 at 12:01 am

I believe that this is the same Eric I used to email long ago on the old forum around 2003-2006? He was a computer programmer & had a young son & wife at the time, maybe around 10 or so? It must be the same Eric… He was extremely intelligent, I loved his posts, & he would be walking & then get hit really hard & be almost like a quad for a time. Once he posted about what would happen if he just went off of all treatments, we were all so afraid he would actually do so. He was searching very hard for the right treatments all of the time, God bless him, so sad…

CIDP can kill, if one is refractory to treatments & the case is bad enough. Leon Belt was on here & I used to talk to him on the phone a lot. He had gotten to where he could only shrug his shoulders. He died of respiratory failure, but really he died just like one dies from ALS. My friend Robert Dunn who also posted awhile ago, died after his IV line became infected & his whole body bacme septic. Would he have needed an IV for an infusion if he didn’t have CIDP? Yes, this illness can be very ugly…


June 17, 2006 at 10:02 am

And now a tribute to billy preston and george harrison

(Link deleted by Administrator)