Reply To: Problems with IVIG
There may be expert second opinions available in your area, but you did not mention a location.
IVIG is not the only treatment for CIDP, especially when it is not well tolerated. Have you tried some of the other more easily tolerable treatments such as Plasmapheresis?
If your CIDP is not in some state of remission and your auto-immune system continues to produce the harmful anti-bodies, there is the Stem Cell Transplant option … if you qualify for the Clinical Trial and your insurance will cover it (Medicare will not).