Reply To: exercise

THank yall so very much!!! I appreciate yalls replies! Bill- I like the explanation of the “motors” not all working! I sure feel that is the case!! I can still do everything I used to do (I don’t have anything paralyzed – when it all first happened the tips of all my fingers were all floppy though, but now normal after IVIG).. But it’s just every single muscle that is just quite a bit weaker than it used to be.. just shakey after much exertion.

I lead a baseline active lifestyle- my job is running around all the time, a bit physiclal at times, and then two kids 2 years and under- carrying and chasing them around.. that’s why I have tried to be careful up to this point to not over exert myself, since the dr’s have been telling me i’m already technically doing this.. but I have to to lead as close to my “normal” life as I can.. but I am feeling better and better, and having the urge more and more to try and get a little bit more in shape! Hopefully with more frequent IVIG I will be able to work out again!!! 🙂

GH- thanks so much! I will try to find that as soon as I get a minute!! I imagine it is a fine line between have the exercise help you and over doing it!

Goodney- I can’t believe you were able to workout the same throughout all of this!!! I can’t even imagine that is great!!! I could barely put one foot in front of the other

Does anyone else feel like every single muscle in their body was affected? it went from my toes to my face and everywhere in between, and still they all just have less power than they should at 31 years old.. but hey, i’m still VERY thankful I’m doing as well as I am almost 1 year after this all started!