I don’t think it’s uncommon at all to have a reaction to IVIG – the headaches in particular. My daughter rec’d IVIG for several years and always received a pre-medication (not sure what without digging out her records) to help prevent any reaction. We also always had prednisone on hand in case of a severe reaction afterwards although we never had to use it. She occasionally had headaches but I learned that if I kept her on Motrin for 2-3 days after an infusion she didn’t have any problems. I was told that alot of the time the reaction is cased by the whatever base solution the immonoglobulin (sp?) is in …so if someone has problems with one IVIG product they can try a different product until they find one that works best for them. Speed of the infusion can also impact how your react…slowing it down the rate of infusion can help. Tons of liquids before and after can also help prevent the headache. Good luck!

Not sure if one would consider this an allergy. I would, but the doc never said that, but did stop treatment immediately when I developed multiple ulcerations in mouth and nose. Tried different brand, same thing occured and a dangerous drop in blood pressure. Doc said no more IVIG ever.

I do have a drop in BP with PP, 94/56 but that does not seem bothersome to the doc. Not sure how low it went with the IVIG. Must have been pretty low.

Blu

Ouch, the feet, that just sounds incrediably painful.