January 22, 2008 at 9:16 pm

I can understand how trying it can be for the “veterans” of gbs to re-live their onset and treatments so I want to say [U]thanks[/U] to every one of you that have replied to my posts. You have filled a very important place in my life by educating me, supporting me and encouraging me as I seek proper diagnosis and treatment.

Since this syndrome is so rare, a person can easily feel frustrated and isolated. That’s where you guys come in! It may sound corny but it’s as if I can actually feel you guys put your arm around my shoulder and say, “Hey, you’re gonna be okay. Get plenty of rest, take each day as it comes!”. That has been invaluable to me.

The neuromuscular MD said that since I have positive reflexes, I do not have GBS. He says, “We NEVER see people with reflexes and have GBS”. However, he says what I do have mimics gbs. I have another LP in the morning so we’ll see.

Whatever the diagnosis ends up being, I want you all to know that finding this website and especially this forum has been a lifesaver for me. You are undoubtedly the bravest and most unselfish group of folks I’ve ever known. Thank you!


December 23, 2006 at 9:18 am

I’d like to add that it’s important that our new members “buddy up” with another member of their choice and exchange emails, so that you have contact with someone when the forum is down.

Many of us will go to the UK forum when the USA one is down, so it’s a good idea to go there, get familiar with it and join. That’s our BACKUP!

AND MAKE COPIES, SAVE or PRINT OUT any posts that are important to you.