‘off to see the wizard’

Tomorrow we go to Vanderbilt to see Dr Donofrio- hope we get a little help. Re-read all the thoughts on this thread- I appreciate you all more than you can know. I really see the cycle- 6 weeks- we get 5 good weeks where Todd can do anything then 1 week where he slows down a lot then 1 week where he is totally in bed. I wonder if we even halved the dose every 3 weeks it would level out the peaks and valleys?

PS My daughter calls the IVIG his ‘Superman Juice’ as he can really leap tall buildings with a single bound right after the infusion these days. Hope we can get some guidance in Nashville….

Thanks all, Sigrid