My CIDP Experience

Hi,

I am diagnosed with CIDP bases on EMG testing, nerve and muscle biopsy, and spinal tap. Since Oct. 2008 when my condition worsened after a bout with a virus I have ha IVIG, Prednisone, Plasmapheresis. Nothing worked and lots of nasty side effects.

Ten months ago I went to St. Elizabeth’s for a third opinion after my local neurologists only recommendation was continued PF which is not a practical alternative due to cost and logistics.

Point of interest: The new doctor said that I had not had enough of any of the previous treatments to have made any difference. There are a lot of other treatments available, albeit more aggressive and with less history.

I was put on cytoxin nine months ago. It did not work either.

I have just started cyclosporine and hoping for the best.

I have a lot of fatigue with the cyclosporine. I would appreciate learning from you what herbs, etc you found improved your strength.

Thanks and good.

Ubbietom