Memory loss, i can relate to that . Peoples names words,i was walking around in circles looking for my car keys starting to panic finally found them on the washing machine lid ,no idea why i put them there and dont remember doing it. I take my tablets first thing in the morning and there are days i wonder if i have or not.Forgot which aisle the rice was in at the supermarket and ive been shopping there for 20 years. Things like that happen most days and my husband thinks ive lost the plot but i told him thats what gbs has done to me. Does it get better with time ?:)

😀 Hi 14 months on being diagnosed with gbs and my memory has been awful , stopping in mid sentence , forgetting what i was saying , sometimes i have out of body experiences . My neurologist said gbs dosnt affect the brain and the swelling in my legs and hand tremors arnt related to gbs but could be parkinsons disease . I had a second opinion and he said no way its p d. My neurologist also said i was making a very slow recovery. but prof olver who is the top guy of rehab said it would take at least 2 years for the fatigue to lessen and 2 hours of rehab every day before im anywhere near normal. So its hard to take in the information im told from different neuros, gps etc when its contradictory. Its important to keep positive and be able to laugh at ourselves , i did this morning when i was going for a walk without my crutch and i turned the corner too fast and i fell over. ( I was on my property , not confident or strong enough to venture out in public yet. ) keep smiling zanna

Hi 14 months on being diagnosed with gbs and my memory has been awful , stopping in mid sentence , forgetting what i was saying , sometimes i have out of body experiences . My neurologist said gbs dosnt affect the brain and the swelling in my legs and hand tremors arnt related to gbs but could be parkinsons disease . I had a second opinion and he said no way its p d. My neurologist also said i was making a very slow recovery. but prof olver who is the top guy of rehab said it would take at least 2 years for the fatigue to lessen and 2 hours of rehab every day before im anywhere near normal. So its hard to take in the information im told from different neuros, gps etc when its contradictory. Its important to keep positive and be able to laugh at ourselves , i did this morning when i was going for a walk without my crutch and i turned the corner too fast and i fell over. ( I was on my property , not confident or strong enough to venture out in public yet. ) keep smiling zanna

I used to have a fanastic memory, also used to teach math & English. Now I feel that I am always in some kind of a fog. Can’t remember what movie I watched last night or who was in it. Can’t remember how to spell a word, or sometimes even the name of it. My mother-in-law has severe short term memory loss & I always fear that I am going where she is.
My only gauge to see how normal I am is to compare myself to my husband who at 57 is two years older than me; says he can’t remember things at times either. But I don’t see it in him, I know it is my CIDP. But my long term memory is still very good, so I believe it is the CIDP, probably the fatigue I seem to have all of the time. Don’t let any neuros tell you that it is “all in your head.” No pun intended!
Pam

Hello Peggy,
I agree with Dawn. If you start feeling symptoms again, that means you do need treatments. Some of us probably have to be on a maintenance for a lifetime and you now need to find out how often you need them. Maybe every six months would work for you since you’ve been off since September. Maybe if you went back on treatments, feeling better might help your memory.

Piper,
I don’t know you, but you are part of our family here. You are in our thoughts and our prayers. Many of us have felt the grief at the loss of a loved one or dear friend. Please feel the hugs I send.

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