June 19, 2010 at 10:57 am

I agree with Rossana, plus it’s not anti-social, it’s protecting your own life. It’s also knowing how dearly you will pay for social events, or socializing. Our fair weather friends will soon be gone, only true friends & friends in the same boat will remain.
You are in my heart & in my prayers.


June 23, 2009 at 2:45 am

Hey Jo Jo! When your mom leaves for California. I would cancel the PT for those 10 days and reschedule when she gets back. I would take a good rest those 10 days while she is gone. Maybe then you will see some improvement. Don’t let anybody use your Bi Polar as being the problem with this numbness and tingling.
Those 10 days she is gone. Get on the couch and watch TV and do totally nothing! Hope the new Neuro will help you soon. Hugs
Linda H


May 24, 2009 at 8:26 pm

Steroids are the firstline of defense, but theDiagnosis SHOULDbe confirmed by the LP (rest a cople days after- SERIOUSLY)

Anyway, IvIg is the next Course ofAttack- Honest, ITworks in a major percentage BUT, Like Jersey Mike0 it made mine worse, and sterids should be watched, carefully, also.

ANDa Mile walkis serious, gor a CIDP’er- I used to drive 200 miles a day, at times and remember 20 miles a day on a Bike. You gottabe real careful tostrike a balance- exercise to keep strong, DO NOT OVERDO, OR, THE DISEASE GETS STRONGER- It’s tough- I deal w the balancing act, porly, myself
Wok-a-holic-Porch Monkey;-) (No, not a racial slur- I cain’t Work!)


September 10, 2008 at 9:13 pm

JoJo, Hey Girl!
How ya doing? As I said above to Mary Beth I continue to take one day at a time, after 17mo. of everyone telling me it just takes time, I can totally understand where your coming from. So many days I feel exactly like you do. I truly believe we would not be human if we didn’t get discouraged & depressed over our condition.
But I also agree this web site has helped me alot. I wish I would seed more success storfies, BUT, thats okay because we can all relate to one another & be supportive. And at times thats what we need.
Keep your chin up & hang in there:)