I get it…

I had no idea how young you were when I responded, or how young your children are. My daughter is 33 & due with her second in a week or two. I just can’t imagine if it were her with this illness. I was struck at 48 & remember that foremost in my mind was the fact that my youngest child had just turned 21.
I know all too well when you complain that people just don’t get it, or that we look too well to feel this crappy. Yesterday I had a good day, no I can’t walk without my AFOs, run, jump, carry anything, etc. But I actually felt somewhere near to what a healthy person my age must feel. I can’t remember the last time I had felt that way. I can’t offer any more suggestions, but I certainly get it. I can say a prayer for you, no more, no less…