Hey Tim! Your thoughts about children getting this stuff are my thoughts exactly. It tears my heart out knowing a child has to deal with this stuff. So young and vibrant but yet they are having to be adults at the same time frame.
It’s bad enough hearing about the child but I deeply ache for the parents too. The parents have a whole lot to worry about. And you know there is always a fear that your child is not getting better or the fear of loosing them.
I deeply admire the parents for dealing with this situation and more so admire the child! I hope Emily gets better!
Hugs
Linda H

Hey Tim! Looks like you are getting another storm coming in too! ROFL! I have not seen a flake yet in my area! Would love to see some white snow. Our area really needs it too! Send it on down! I’ll take some! LOL!:D
Ohh! When me and Andy lived in PA I remember the nasty snow storms. I think it was in 1994 but not sure. It was where we had 17 snow storms that were one right after the other one. Ohh was that a fun experience. You could not even get to a store for over a week. Everybody was stranded.
The snow and real cold weather alway’s bothered my neuropathy. Tim! Be careful out there in the snow with that neuropathy. It can make you feel bad! It did me several times. Stay warm and toasty!
Cuddle with your wife eee poo and enjoy the Christmas Blizzard! A little Hot Chocolate and a nice warm fire! LOL! Hehehe!
But you can send some down here in NC. We have nothing. Going to be in the 70’s possible this weekend. Depending on the front we get. I might even go outside and get some sun! ROFL!
Hugs my friend!

Linda

I’ve responded to one of your previous posts regarding my diagnosis of Multifocal CIDP, also known as MADSAN. Two years ago my physicians tried IV methylprednisolone (1 gram infusion twice a week) Two days after the first infusion, I woke up with dramatically worsened symptoms. The steroid made the disease kick into overdrive. It was not side-effect-type weakness from the drug, it was an acute increase in CIDP activity, triggered by steroids. A neurologist at Mayo Clinic told me that he has seen this occur in a small percentage of CIDP patients, and he had no explanation as to why.

This exacerbation dramatically increased the overall baseline level of disability that I now deal with on a daily basis.

Best of luck to you.

Bill

Hey Tim! So sorry to hear that the Prednisone is not working for you. Dr. Brown will most likely start another treatment plan. I was really hoping the Prednisone would help but if it’s not working then they might have to start something else. Wishing you good luck today and hope all goes well!
Happy Thanksgiving!
Linda H

Hey Tim! I can tell you are a bit on the nervous side over taking this medication! LOL! Your going to do fine! But you sound like me when I have to start on a new medication and not knowing the unknown is a bit scary! But you will do great! I emailed you also! Hugs:D