Heat has taken control more and more as the years pass. Diagnosed 2000. Today if I am in the humidity, even starting my car, I turn into a great big wet mop and lose my energy like zippo. Nobody seems to understand. Glad you guys are here. I.m quite sure it has something to do with our hypothalamus. My Neuro told me that when recovered
(HA,HA) from GBS, our bodies react like Chronic fatigue syndrome. The hypothalamus, heat, cold, control, in our bodies is very weak, so therefore we experience these dreadful residuals. Some times it.s hard to avoid but I try m best. Utilty bills out the ying yang. xoxoxoxo Roxie:D

im in ohio and the last few days it has been mid 90 and my feet hurt so bad and im tired too.i love 80-90 s but like you it makes me hurt more and more tired we have had humidty with this heat also.

Heat and humidy just wipes me out. I think it’s more the humidity. I get soooooo weak. Of course once again nobody see’s this. I always try to put a smile on my face and act normal. Sometimes I wish I didn’t do this but most people don’t understand. My mom was one of the only ones. Now she passed, Memorial w/end. I miss her soooo much. It seems like she was one in a few that I could talk to that would reallly understand. God bless you mom. xoxoxoxoxoxoxoxo Roxie