effects of heat and humidity on post-GBS

Welcome to the form. I have CIDP and the heat and humidity clean my clock. Northwest Florida can have some very intense summers. They can feel hotter than the desert.

Yes, here in Misissippi we have had a lot of hot and humid weather. I had GBS/MF about 28 yrs ago and yes, it does effect me a lot. I have a central unit plus a single unit in my bedroom.

Hi Alayne, Welcome to The Family. Fight for an Air conditioner! Heat and humidity can play havoc on your residuals. A dehumidifier won’t do the trick like an ac would. Get your dr to write an order for it, the housing police can’t decline a drs order. Take care.

I had GBS 21 years ago, and the past few years my residuals have been giving me a tough time, they are definitely affected by the heat and humidity. Definitely fight for an airconditioner you will feel so much better. I find that in summer I hardly go out as it affects me immediately – Thank goodness for aircon.

Dear Alayne:

Overheating, dehydration, and a loss of electrolytes will all negatively effect the operation of nerves, which are already pretty inefficient because of GBS anyway. Humidity will cause more problems because it slows the evaporation of sweat on the skin surface. Evaporation absorbs heat from the body. Lack of evaporation will cause overheating.

You seem to have a valid medical case for seeking a code modification for an AC unit.

Lee

hi alayne & welcome from one san diegan to another,

even if you live inland the heat lasts only for 3 months, but during that time you need relief. so for this time you could buy one of those portable A/Cs that are on wheels & have an exhaust vent to the outside like a clothes dryer. do you need permission for that? maybe just do it. take care. be well.

gene gbs 8-99
in numbers there is strength

I’ll add a note to the others. My doc said that with the mylin sheath (like a tube) missing in spots, the messages don”t travel “straight” from point A to point B, they scatter out into the body. And heat appears to make this worse for most people with a peripheral neuropathy. I definitely notice a difference in the summer.

This doesn’t explain why I suffer so from the cold of winter! Any guesses on the why of that??

Dear Judi:

Just a guess, winter time requires more energy to maintain body warmth. If your nerves are already taxing your body for needed energy, the cold could make matters worse.

Thanks Lee. That surely makes sense! Does that also make “fog on the brain” 😀

Heat and humidy just wipes me out. I think it’s more the humidity. I get soooooo weak. Of course once again nobody see’s this. I always try to put a smile on my face and act normal. Sometimes I wish I didn’t do this but most people don’t understand. My mom was one of the only ones. Now she passed, Memorial w/end. I miss her soooo much. It seems like she was one in a few that I could talk to that would reallly understand. God bless you mom. xoxoxoxoxoxoxoxo Roxie

Alayne, summer usually affects me terribly with my extrimities. I stay out of the sun and inside all the time. It is being different this year. Take it with a grain of salt and keep cool. Take care and get better.