My hands/fingers were badly damaged by CIDP. I was diagnosed in 1998 and they were at their worst the first two years. My thumbs, especially the right, would lock and I’d have to move them around to loosen them up. My fingers would cramp and crumple on me and I’d call it “finger fumble”or “noodle fingers” I would say the worst damaged is my right thumb (it just does not work right) and my right index finger and I’m right handed. Hand writing is “EXTREMELY” tedious for me still and though my typing is difficult, it’s a lot better then it used to be and I can sit and do longer sentences.
Use of my hands is my contentment in life, so I will over-use them and that old “finger fumble” will come back.
My hands cannot button buttons or tie shoe laces, things like that, but velcro is GREAT! And I’m a dropsy person, my grip is very weak.
I just can’t say how much a person recovers because we’re all different.
my hands was all in mess and I have been working with speacial clay to get them to get strength and to stretch theim in right possision, and with lot of exersises and stretch I have goten theim almost right my hubby was realy afraid that I would have to have more help, but with this you can get the mucscle to respond to your doing and your head tell your hand what to do and in the end they start work as you want theim to do.
hope this help, this is just work and more work to healthy again after GBS
I have CIDP and I have hand tremors and for me, they get worse when I am stressed. My hand tremors started after one of my falls during the early stages. As far as the feet go, my feet don’t get a burning feeling, but I do have other weird sensations, almost like I am walking on a big ball. And we are all different, so think of CIDP as the snowflake and each one of us is the pattern, but yet we’re still all snowflakes.
I was able to get most of the use of my hands back after my CIDP was arrested & I allowed them time to heal. But my hands were pretty bad for the first 26 months, unable to do much of anything at all. Now I can do virtually anything I need to do with them, but I do some things a little differently. For example, I cut my fingernails with toenail clippers, as I can grasp around them like a fist. I think it is way to early to let them operate on your hands.
I also had somewhat similar problem. My hands were very weak but slowly improved afterwards. Whatever the residual of my suffering from GBS, are the weak hands. Due to the weakness in hands, initially the Doc had disallowed me to drive the car and after subsequent thorough examination three months later, he permitted me to do so.
But please be sure that there will be an improvement as the time passes.
It can take a very long time for the hands to recover, as there are so many small nerves there. I had all but given up hope after 26 months (I have CIDP) then all of a sudden I was able to get back to about 80% usage. I can now do everything I need to do with them. Just try to be patient.