good question

Anonymous
January 2, 2011 at 5:53 pm

[FONT=”Microsoft Sans Serif”]~ i still have pain and have been trying to rack my brain to find a medicine that i can take while working (as a cop) – they ain’t going to go for the opioid stuff 😮

i have been reading about nsaid’s — but i feel motrin won’t be strong enough. i see that they now have some called cox-2 inhibitors… celebrex, for example, but it has this nasty little side effect of causing heart attacks for some. while i don’t have a heart condition, i don’t care for the idea–
maybe there are others of the same ilk??

and then there is tramadol which is an opioid antagonist??

essentially i need to find something that i can take while working and still pass a drug test…

any ideas?

thanks,
alice[/FONT]

Good question!

Anonymous
January 25, 2010 at 4:16 pm

All:

I have been very interested in the ressearch on several compounds being tested in MS patients due to my feeling that there is enoug commonality between MS and CIDP (both of which involve inflammation and demyelinization) to make it likely that success in treating one could lead to success in treating the other.

I have spoken to several neurologists about the possibility that compounds which reduce inflammation and/or demyelinization in MS patients could do the same in CIDP patients. The answer from each one has been that they don’t see why not; a couple even said that it’s a good possibility. I have yet to hear of any studies involving CIDP patients, unfortunately, but I keep suggesting it.

Sometimes pharmaceutical companies will make their products available to patients on a compassionate use basis. Maybe if enough neuros and patients start asking questions, that could happen for us.

Has anyone got a neuro who might be willing to give it a try?

B.

good question

Anonymous
January 6, 2008 at 9:31 pm

Hi all! Very good question about the steroids. If the neuromuscular md suggests prednisone for tx, I will question that….I was under the impression that steroids were contraindicated for GBS. If anyone has good info, please let us know.