December 24, 2010 at 11:13 am

gamunex 130gm— 2 days of 65 gms ea. day. 4 hours, done at the the hosp infusion ctr.—-15k.–. Hosp settles for this as it is anthems cap for this procedure.
-I dont know about you all–but for me new year–new deductable to meet : ( I never really paid much attention to health ins up until i got cidp–other than an annual physical i never used it. Now that Im forced to use it, I realize how much insurance co’s have to pay and deal with. What a lot of us dont realize for every one of us depending on them to keep our quality of life as good as we can with procedures we NEED…are the people on mainecare who are running to the ER at every little cough, sneeze, ache or pain because they can—because it does not cost them one cent.
I dont know about everywhere but–mainecare is very abused in my state which then forces the insurance companys to pay more to pick up for the low cost of mainecare reimbursement to the hosp’s–then eventually trickles down to us–the people who are buying insurance. Its a sad system and even more so that nobody can come up with a solution to the problem. Lori


November 23, 2010 at 11:03 pm

I wholeheartedly agree with Lori, Gamunex is the best. My IVIG prescription also specifies Gamunex, with no substitutions allowed, and I have never received any other IVIG product. I had some side effects at the beginning, but those quickly passed. I believe that Gamunex is the only FDA approved IVIG product for CIDP, which is what I have.


November 23, 2010 at 9:45 pm

Erin–im not sure if its just the way my rx is written or if its to do with the type of cidp but i have gotten nothing but gamunex since starting ivig. I never even realized that they substituted until last week when I asked the ivig nurse. she told me that my order specified only gamunex and that was why it was never substituted. if you do continue to have problems maybe you could ask the dr about it. I hear you–my body loves the gamunex too–I love the energy i have getting it–makes me feel more like my old pre-cidp self!!: ) Lori


April 21, 2009 at 6:51 pm

Wow, I see huge variations.
What is charged and what is payed are two different things.

Every month my EOB pays out $13300 for 170 grams. that $78 a gram.
My HC company buy’s in bulk and ships to me. 160K per year at that dose.
It won’t take long to hit the cap.

Remember the TV show the $6million dollar man. Well, I am sure some will outdo and probably have already outdone that til its over.

Supplies are on another EOB.