Thank you for suggesting a fundraiser for the Foundation. I personally am delighted that you would want to help in this manner. We are very careful when it comes to these events because we want to make sure that money collected actually comes to us so that we can help patients, families and healthcare professionals. We do not want anyone scammed. Having said that, the first thing people can do is contact their local chapter liaison(s) to help with a Walk-a-thon during our Awareness Month in May. We only had about seven Walks last year but would love more to take place because it also helps with awareness. You can contact the Foundation office for more information. By the way, the Walk is called: Miracle Mile Walk – Because We Can!
Any local newspaper article also can help if you know of a person who got GBS or CIDP and may be in the public eye.
I hope this information helps.
GBS/CIDP Foundation International
I am also new to the forum, my 8 year old son has CIDP 2 years ago, I think a walk a thon would be great to get the word out about GBS and CIDP, there are not to many people that have even heard of either, I know I didn’t until he was diagnose. I would be very intrested in some kind of fundraiser.