It is great news about Kevie’s NCV/EMG tests. What I take this is as an indication that the current therapy is working to help in as much healing as possible. It seems best to keep a slow and gentle approach to weaning off the immunoglobulin nfusions and to continue to be “proactive” as your doctor says to prevent any backsteps. My understanding is that nerves never heal the way that they were made the first time. This is part of the reason that people seem never to get life-long back to 100% and that some people have residuals and late consequences. This is not negative, but just a statement of the fact that one can learn to appreciate 95% more than the original 100%. Hopefully, Kevie will get back functionally to 100% in strength. If the pain continues, this should be addressed for itself.
My last comment is when I read about the Hope ring slipping, I was 1) proud of you that you were able to lose weight and 2) my first thought about it was “hope fulfilled”. Maybe it is a sign that there really is a potential to have the hope of health for Kevie fullfilled and for him to be able to live an almost normal life. It seems much, much more like a sign of this than any sort of bad omen–the association is with a good event!!!
WithHope for a cure of these diseases

News like that is very promising. You both know that healing is continually
happening and that as more time elapses it should get better and better.

Awesome!