Ericc and Dick

February 8, 2008 at 11:06 pm

my journey with cidp seems very similar to yours. I started experiencing numbness in my feet in 2000, after a viral infection in 1999. I was dx with a mild case of cidp in 2003. Not much changed over the last 5 years. I have not been on any meds.
Last summer I started noticing a change in my legs. The numbness had moved up from my feet and calves, and was now in my thighs. It really became pronounced by December. My legs now feel very fatigued all of the time. I also have noticed that I am feeling the same fatigue in my arms. No numbness or tingling, just a tightness and fatigue.
I had an EMG this week and the Neuro said I had some atrophy in my feet. Its scary because it all happened so slowly, that I can’t really tell when it started getting worse. I havent experienced a lot of pain, just the fatigue. I have a LP scheduled later this month, then hopefully I can get started on IVIG.
Grace to all,