December 8, 2011 at 8:20 pm

hello .. iv been living with cidp for over a year and a half now. im getting 100g ivig every 2 weeks. im interested in startin curcumin , how many mg’s did Dean start with and what sort of maintence dose is he on ?

Thanks Reed


September 15, 2010 at 3:07 pm

[QUOTE=Lori McCormick]Dear All,

Just wondering if any of you have built up a resistance to IVIG? My doctor has recently increase my infusions to 80 g every two weeks after my symptoms started to worsen. Anyone else receive this high a dosage?

Best Regards,

I have up to 100g of IVIG in one week for 8 wks consec. Then drop it down to 40 g a week for the next 12 weeks. I made a very good comback and was strong but I still have bad flarups yet. 16 wks ago I was totally paralized again (3 times now) but I am back up and walking around again but it is getting harder each time too come back. IVIG’S work on some people but not all. I am in slow motion now because of my balance isssue but remember just keep fighting. Dont ever give up!!!!~!


January 22, 2010 at 2:13 pm

I get 100 gm every two weeks. Im 6’3 220. It seems like your not getting enough.


November 20, 2008 at 8:10 am

Howdy All,

The dose is 60,50,40,30 to 20 for now, 3 weeks at each dose every day. Sounds like Quite a Shot to me. I was hoping for reductions at two weeks, but I’ll hang tough. It will be worth the trouble if my condition proves treatable. It is supposed to be a trial for now anyway. 12 days into it. If this
works, to me, that means other treatments should help too, and that is one fear that I do have. Will my body will respond to different treatments.

Before starting I went on Zantac 150 to premed my stomach, knowing they cause irritation. I know one thing, they taste Nasty. I shoot em quick and guzzle milk. He also put me on Calcium with D to try to offset the issue with calcium loss. Then he gave me Ambien in the event I can’t fall asleep.
So far I can fall asleep, but I wake up at 3 am and have difficulty going back into a sound sleep. The last two days the nap didn’t happen so it sounds like the energy boost is kickin in. The knees are starting to feel Happier and alot of the aching is gone, just waiting for that strength. When I can do some extra Toe Ups, Then I’ll know.

Some one else did tell me I reminded them of Dr. Drew. Being a doctor wouldn’t be bad, My wifes cousin calls me Nicolas Cage. that was a few years ago when I was more ripped, and had some color in my hair and no glasses.

Thanks for all your help as always. Have a Great Day. Thanksgiving is on the Way!! Turkey Yummy, Stuffing UMM, Pumpkin Pie Lickity!! Hunger OOPS!
Better watch out with these holidays coming and those steroids EH!


May 5, 2007 at 5:18 pm

His Neuro has him taking 2 400mg capsules 3 x a day. I just hope they get rid of some of his back pain, neck pain and headaches.
He hurts lots of places but those places seem to be the worst for him.
Trudy, natesmom