December 3, 2010 at 9:36 pm

This has never happened to me but I was on IVIG for four years and I can put myself in your place and say “what would I do”.
The first thing I’d do is keep calling my insurance until I found out what they wanted me to do to make it valid.
I’d get support and advice from my doctor.
I’d call the foundation because they do help when insurance denies coverage.
I’d consult with an attorney.
I’d go to this forum and talk to my people.
I’d probably try to do searches on places like google, webmd, dexknows, ask to find out what to do when insurance denies treatment that’s needed.
I’d go to the web site of my insurance and learn how they work.

The tapes from the 2010 symposium are now available to listen to. You can go to the foundations main page to listen to the one on insurance issues. You have to join twitter to listen.

BIG HUGS, if I could I’d come to you and help.


January 17, 2008 at 7:26 pm

I started another thread on this in the main forum. They approved me after 10 mounths. I did stay on them and had all the right paper work and all the med recs but I think the most important thing was the nerve condution test.It came back way abnormal. I think another important thing was I poured concrete for a living and I darn sure can’t do that any more. Keep after them all the time find out who your case worker is and stay on em. I did threaten them with a attorney. Hang in there and I hope that if works out. I did see on the news that they are looking into why it takes so long for people and the head guy says that they are trying to fix it. I do think that calling your state senetor may be important. I hope it all works out for you.