ct scan

September 29, 2009 at 5:29 pm

had a ct scan done on my kidneys today. Now i am almost completely incontinent. I wear pads/ they arent holding enough so i may have to go to the full underwear. i am getting frustrated and afraid to go out for fear of an “accident” i was incontinent befor when i had GBS.it took forever to retrain my bladder. I do not want to go backwards. the tingling is getting stronger in my hands. gu ess i will wait until the results of the ct come back.

CT Scan

March 24, 2009 at 9:02 pm

[QUOTE=michaeljay]Andrew may I ask the rationale for the CT scan?[/QUOTE]

Hi Michael

I am not sure exactly, but I can give you the background and what I figure are the reasons…

Until last year, I had only seen my neurologist. Knowing that the source of the anti-MAG is related to a blood disorder, I had always wanted to see a haematologist too in order to better understand the underlying phenomenon. In addition, it is reported that there is a 1% per year conversion from MGUS to cancer (Waldenstroms macroglobulenemia or multiple myeloma). So late last year I requested of my neurologist a referral to a heamatologist.

Last month I got to see the haematologist at Princess Margaret Hospital (which is hospital well known for cancer treatment). I should add before going further that both my neurologist and haematologist are top notch doctors, well known in their fields. The haematologist did some tests but wanted to look deeper to make sure there were no underlying causes of the MGUS (like Non Hodgkins lymphoma for example). The CT scan was of the chest and abdomen so that they could see the lymph nodes and other parts associated with the immune system.

His comment was that the results were negative…i.e. no cancer. So the short answer, after all that above verbage, is that they were checking for cancer.

CT scan

March 24, 2009 at 12:08 am

Andrew may I ask the rationale for the CT scan, is this standard procol for your doc’s as they follow anti-mag??, if so first Iv’e heard of it. I’d welcome any insight you have??

Ive have anti-mag and did the rituxan for 5 or so courses

thx so much