I would plant my self in the waiting room of your primary or the neurologist from the University. With my experience, you must take control of your illness, symptoms etc. and tell the doctors what do do. Do Not let them put you off. I am tired of Drs telling me it is GBS, call me if you need me. What ever happened to the old fashioned doctor who called to tell you your tests results, made follow up appointments. I thought I was having a relapse two weeks ago post flu. When I called my neurologist, he said ( I mean his nurse assistent) to go to the emergency room. What did he think they would do differently, tell me I had GBS? I was out of town and did not want to go to an unfamilier hospital. Her response to me was ” your call”.. How about get back her immediatley and we will work you in so doctor can see you. Luckily, I decided to wait it out, and strength return. Again, take control of your medical care and insist.