3% get renewed weakness

What Is the Long-Term Outlook for Those With Guillain-Barre Syndrome?

Guillain-Barre syndrome can be a devastating disorder because of its sudden and unexpected onset. In addition, recovery is not necessarily quick. As noted above, patients usually reach the point of greatest weakness or paralysis days or weeks after the first symptoms occur. Symptoms then stabilize at this level for a period of days, weeks, or, sometimes, months. The recovery period may be as little as a few weeks or as long as a few years. About 30 percent of those with Guillain-Barre still have a residual weakness after three years. About 3 percent may suffer a relapse of muscle weakness and tingling sensations many years after the initial attack.

Where Can I Go for More Information?

The National Institute of Neurological Disorders and Stroke conducts and supports a wide range of research on neurological disorders, including Guillain-Barre syndrome.

For information on neurological disorders or research programs funded by the National Institute of Neurological Disorders and Stroke, contact the Institute’s Brain Resources and Information Network (BRAIN) at:

BRAIN
P.O. Box 13050
Silver Spring, MD 20911
(800) 352-9424

Ali, Maybe you should call this institute and ask what takes place with this 3% of post GBS people and if this is the same as what happens with Post Polio people and maybe get something in writing for your presentation this fall. God Bless