Reply To: Ignored, disregarded, overlooked??

August 10, 2023 at 8:46 pm

I realize this is an old thread but hope it’s okay to respond to it. I had that lousy experience like you said especially when with others. If they could experience this demeaning treatment POSSIBLY they may act differently.
I very much appreciate your advice and references in response to questions on this forum! Btw.
Would it be possible to talk on the phone? I had GBS diagnosis ten years ago, at age 50 with limited recovery but have since been losing ability. Today neurologist revised diagnosis to CIDP.  You mentioned some of your treatments but seemed to indicate you would do some things differently. I use forearm crutches full time and wheelchair when any distance or standing more than minimal is needed.
Most anytime at your convenience would be greatly appreciated! Sincerely David Bartoo 903-452-9160 cell (call or text) or poss message to set a time?