Reply To: Explore New Treatments!

July 23, 2022 at 10:20 am

I found this Jim. Of course not gov clinical trial. I also found discussions on Mayo Clinic forum. Lastly, although my original dx at nyc center of excellence, on more than one electro studies was Cidp as described almost verbatim in this article, but post covid, what is described here as sfn seems to be manifesting now ie.thinning less elastic dry skin in hands lower arms.  Do not experience ischemic pain, cold extremities. Tightness in ankles,jts,  hands feel like tight glove, numbness, loss of balance worsening.  Docs here just play w ivig dose, frequency, wont consider other drugs ie. ritux, or will they acknowledge covid may have affected condition. ” No clinical data to support that “. Of course not, no studies have been done !

 

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