Reply To: Have you relapsed and recovered?

September 14, 2020 at 7:57 pm

Typically, it takes around three years for the body to rebuild Myelin damage (as best it can) following GBS/CIDP. MS can halt the production of new Myelin and those patients may be unable to regenerate lost Myelin. In GBS/CIDP the Myelin Sheath can rebuild itself at the rate of approx. 1 millimeter a day. This is very slow and there has been little shown to speed up the process. Age does not stop this process but may slow it in some.

Several over-the-counter supplements can help boost our systems to rebuild Myelin. B12 is an important component in helping to regrow Myelin and repair neurological damage. Many doctors recommend high dosages to help treat CIDP and related conditions. I take B12 (Methylcobalamin 5000 MCG) every night along with Fish Oil (1400 MG + 900 MG Omega-3 fatty acid) and D3 (125 MCG/5000 IU) every morning. I had taken Alpha Lipoic Acid with Grape Seed Extract (1200MG – 1800MG daily) which helped me a few years ago. Other supplements are covered here:

31 Natural Factors that May Increase Myelin

Axonal damage, depending on severity, may not be something our bodies can easily reverse. Here are some articles that address what may be done to help Axonal damage:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5243173
https://www.sciencedaily.com/releases/2017/03/170308131202.htm
https://en.wikipedia.org/wiki/Neuroregeneration