Reply To: How long to notice an improvement

November 13, 2018 at 5:38 pm

Hi, Ann-Marie.

My doctor is still trying to work out the correct IVIG dosage and frequency for me, but I do have some experience that might be relevant to you.

After I’ve gotten high-dose IVIG treatments (lasting 2-3 days), I have typically found that my strength and balance start feeling normal after about 7-10 days. The tingling has been unpredictable, coming and going as it pleases. And as for the autonomic reflexes (i.e. when the doctor hits your knee with a mallet), that may take 4-6 months to come back. The trick with CIDP is to find the maintenance (smaller) dosage that keeps the symptoms from returning before you get treated again.

Good luck to you (and all of us)!