Reply To: Was I misdiagnosed? Here's my strange GBS story.

September 2, 2018 at 3:08 pm

I developed a mild form of GBS, too. Also had (have) some vertigo, stomach issues along with peripheral neuropathy in my lower extremities. This was over 3 years ago and I still have some lingering symptoms. I had a spinal tap that was negative for the proteins. This was because I wasn’t diagnosed for 5 months (doctors told me they had “no idea”, too) and this test gets less accurate over time. I also had IVIG which was also not effective since it was too long after I developed it. My neurologist at Duke did the EMG and NCV which documented I had GBS in her opinion. Only treatment was PT for vertigo and Rx’s (neurontin, lyrical, and tramadol for pain). At a support group a neurologist stated he had treated GBS for over 35 years and had documented over 50 distinct types of GBS/CIDP, the point being that it’s a syndrome, not a disease.