Reply To: late Miller Fisher symptoms and delayed recovery
June 29, 2017 at 12:51 am
You are too far downstream from the initial symptoms for GBS to reoccur, and RGBS is just too rare. Many doctors consider symptoms after a year to be CIDP. CIDP is the chronic form of GBS and can come and go over many years. MFS can accompany CIDP flare-ups.
Treatment (IVIg or Plasma Exchange) is critical to this disease. You are fortunate to not have a bad attack, but that could be in the wings without treatment.
Get all the tests quickly and then start treatment if it is CIDP/MFS. DO NOT let your autoimmune system to continue producing antibodies that attack “self”. The flu shot is known to cause this condition and you must stop the damage the shot did to your immune system.
Are you near a center of excellence?