Reply To: Another round of IVIg treatments

June 8, 2017 at 1:21 am

I think others may pipe in with more specific and medical answers. Since no one has answered yet, I’ll offer my two cents. My neurologist says it takes 6 months to effectively evaluate if IVIG is working. But my understanding is that the IVIG doesn’t repair the nerves, it hopefully stops your body from attacking them so that they can heal. The myelin can repair fairly quickly, but if you had axon damage it can take much longer. I’ve heard that axonscan heal over two years, and after that point you would probably plateau.

For me, I am overall better with IVIG than without (dx 11/16), but my area of original sensory nerve damage (from 2/16) has not recovered.