Reply To: Have CIDP and Diabetes?

May 7, 2017 at 5:07 pm

JK gave good advice about contacting your State to get support. You may wish to read this similar recent discussion for other ideas too:
https://forum.gbs-cidp.org/topic/help-rehab-facility-refusing-admission

Prednisone gave me type II Diabetes, amongst several other afflictions. It took close to 9 months for the Diabetes to abate after stopping the prednisone.

The classes of drugs used to treat CIDP are strong (needs to lower your immune response and relieve inflammation) and all have varying side affects. One that does not have Diabetes as a side affect is CellCept (Mycophenolate Mofetil) or the newer version Myfortic (Mycophenolate Sodium) in clinical trial here:
https://clinicaltrials.gov/ct2/show/NCT02494505

Many CIDP patients have side effects from primary treatments. In these cases immunosuppressive drugs such as cyclophosphamide (Cytoxan), cyclosporin (Sandimmune), tacrolimus, mycophenolate mofetil, azathioprine (Imuran) and type 1 interferon (INF-1?) and IFN-beta can be used to limit corticosteroid and immunoglobulin use and may be indicated because of disease progression or poor response despite aggressive treatment with established therapies. Alternative treatments are discussed here:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3105635

My last maintenance treatment with Rituximab (Mar 2017) was billed at $19.4K before Medicare Part B reductions. I end up with a co-pay of a few hundred dollars. There are many discussions about Rituximab in these forums. A recent discussion that includes my experiences taking the drug is here:
https://forum.gbs-cidp.org/topic/rituximab