Reply To: Newly diagnosed 13 year old child

April 8, 2017 at 8:17 pm

If there are esophageal spasms, they could be the result of another condition such as GERD or Achalasia. Achalasia is a problem with the nervous system in which the muscles of the esophagus and the lower esophageal sphincter don’t work properly. CIDP can affect such muscles, but it is rare. Anxiety or panic attacks can also cause similar symptoms. Such spasms may be more pronounced following hot or cold food intake.

Your daughter may wish to read the following publication and make contact with the author, a 13 YO girl herself in 2007 at the time of her CIDP attack:

This booklet can be helpful to parents when having to help their child navigate this disease:

Finally, here is a more technical publication based on studies that show varies outcomes of different treatments:

I hope some of this information can help you, your daughter, and her physician get this disease treated quickly.