Reply To: Axonal Guillan Barre (AMAN)

February 16, 2017 at 12:19 am

Renee, Thank you for your very kind words! I really appreciate your encouragement to continue posting here! I hope you recover fully from this awful disease… and soon!

I had success and failure from Prednisone. Prednisone coupled with PE stopped my CIDP dead in its tracks (at least for now)! However, it has had many adverse side affects for me. Gave me cataracts, diabetes, shingles, fat face, shaky nerves, thin skin, and a rare condition requiring neurosurgery of the upper sinus track.

I wish you well!