Reply To: New CIDP patient with variances
I am a wheelchair bound paraplegic since 2008 thanks to CIDP. The CIDP gave me a bonus form of restless leg syndrome. It’s a twitching, squirmy feeling in my legs. It is not painful, but extremely irritating. It can keep me from sleeping at times. My neuro had me on Requip (Ropinirole) for my RLS but it didn’t help me and I was experiencing some of the side affects from that drug, so I went off it.
What I found that works for me is a low cost over-the-counter homeopathic item called “Restless Legs Relief” from Magnilife. This works wonders for my RLS symptoms and usually starts working in about 30 minutes after taking it. There are always some that would say this is not a medicine. But, as far as I’m concerned, if it helps remove and/or reduce RLS discomfort it IS a medicine of sorts. I take it daily and it has worked consistently for me for a few years now.
BTW, Lyrica is the med most recommended on these forums for general GBS/CIDP related pain. More info about pain here:
I’m also taking the ALA (1200-1800MG per day) JK recommended. I use the one here:
You may wish to contact a local GBS/CIDP liason for a referral to a neuro in your area:
I hope you quickly get the help you need!