Reply To: Scared at 82

March 29, 2016 at 7:07 pm

I had a similar experience with the rarity of GBS in 2010. I was taken to the ER, spent all day with no results and went home. Overnight I fell and broke my toe in the process, but I couldn’t feel the pain because GBS numbness had already set into my foot. I spent most of the next day back in the ER, this time they diagnosed me with GBS.

I was admitted to the ICU and started on IVIg the next day. Things got worse even after 7 days of IVIg.

If I knew then what I know now, I would have started with 3 days of Plasma Exchange followed by a week of IVIg. This, I believe, would have stopped some of the permanent nerve damage I suffer today.

There are many treatments available today, what has your mom been given?