Reply To: IVIG Treatments

December 13, 2015 at 5:15 pm

Myelin can grow back at the rate of 1 millimeter a day, which is only 0.0032808 ft, this is agonizingly slow but there has been little that can be done to speed up the process, except for the very expensive and experimental stem cell transplant treatment (HSCT). Axonal damage is another thing and you can read about it here:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2846285
https://forum.gbs-cidp.org/topic/determining-axonal-damage-using-emg-results

There are a number of treatments available, including more experimental ones, besides IVIg/SCIg: Plasma Exchange, Prednisone, Cellcept, Rituxan, Alpha Lapoic Acid, Solu-Medrol, Cytoxan, Imuran, Azathioprine, Dalfampridine, and …. hopefully other members will add some of the treatments I missed. More treatment options and info can be found here:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3487533

Deficiencies of vitamins B12 and D have also been known to to be involved with CIDP and some members have cited taking supplements as helping improve their condition. More info here:
https://forum.gbs-cidp.org/topic/b-12-deficiency-amp-cidp
https://forum.gbs-cidp.org/topic/vitamin-d